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August is National Spinal Muscular Atrophy Awareness month |
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August is National Spinal Muscular Atrophy (SMA) Awareness month and we are excited to be moving forward in both understanding and developing potential treatments for this disease. This is the time to come together with your communities to raise knowledge of the disease to new heights. This is why CauseKeepers is the printer of choice for foundations. We aim to not only provide online stores, fulfillment, graphic design and printing to our partners but we truly strive for you to MAKE YOUR PASSION KNOWN. Awareness is the beginning of change. The majority of people do not know about SMA until it directly affects their family. Even the letters SMA don’t ring a bell with many doctors, nurses and community members. This is where you can help. CauseKeepers had the pleasure of working with FSMA by customizing a car magnet for their organization which is used to raise both awareness and funds. Families of SMA was founded in 1984 with the purpose of raising funds to advance research to find a treatment and cure for Spinal Muscular Atrophy, and to support all those affected by SMA. To date FSMA has raised and invested almost $40 million towards SMA research. Our support comes from numerous individual donations and fundraising events held by volunteer families and our chapters. Our successful results and progress from basic research to drug discovery programs to clinical trials provides real hope for families and patients: - Families of SMA has funded 5 multi-center clinical trials for existing drugs that have potential for SMA.
- FSMA has directed and funded the leading new drug development program for a therapy specially designed to treat SMA.
- Families of SMA is building a pipeline of drug discovery programs based on our investments in basic research.
- FSMA has invested significant resources into alternative approaches that show promise to cure SMA.
To date, FSMA has funded almost $40 million dollars in research and provided thousands of families necessary equipment from our equipment pool. We anticipate 2008 to be an exciting year, as we anticipate the results to some important questions. We hope you join us in our efforts to find a treatment and cure for SMA. Visit www.fsma.org.
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